{"id":16194,"date":"2017-12-13T14:24:41","date_gmt":"2017-12-13T14:24:41","guid":{"rendered":"https:\/\/sffd.ch\/fondation-sffd\/swiss-registre-fabry\/"},"modified":"2022-10-10T09:26:43","modified_gmt":"2022-10-10T09:26:43","slug":"swiss-registre-fabry","status":"publish","type":"page","link":"https:\/\/sffd.ch\/fr\/fondation-sffd\/swiss-registre-fabry\/","title":{"rendered":"Swiss registre Fabry"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_column_text]<\/p>\n<h1>Swiss registre Fabry<\/h1>\n<p>[\/vc_column_text][vc_separator type=\u00a0\u00bbtransparent\u00a0\u00bb][\/vc_column][\/vc_row][vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_column_text]Le Swiss Fabry Register est un regroupement des centres de comp\u00e9tences. Les centres de Zurich et Lausanne recueillent et analysent sous forme anonyme les donn\u00e9es cliniques d\u2019environ 150 patients. Ceci leur permet de continuer \u00e0 mieux conna\u00eetre la maladie de Fabry au moyen d\u2019\u00e9tudes scientifiques.<\/p>\n<p>Pour plus d&rsquo;informations sur l&rsquo;enregistrement, veuillez contacter:<\/p>\n<ul>\n<li>\u00e0 Prof. Dr. med. Pierre-Alexandre Krayenb\u00fchl (<a href=\"&#x6d;&#97;i&#x6c;&#116;o&#x3a;&#112;i&#x65;&#114;r&#x65;&#45;a&#x6c;&#101;x&#x61;&#110;d&#x72;&#101;&#46;&#x6b;&#114;a&#x79;&#101;n&#x62;&#117;e&#x68;&#108;&#64;&#x73;&#102;f&#x64;&#46;c&#x68;\">&#x70;&#x69;&#101;&#114;r&#x65;&#x2d;&#x61;&#108;&#101;x&#x61;&#x6e;&#x64;&#114;&#101;&#46;&#x6b;&#x72;&#x61;&#121;&#101;n&#x62;&#x75;&#x65;&#104;l&#64;&#x73;&#x66;&#x66;&#100;&#46;c&#x68;<\/a>)<\/li>\n<li>\u00e0 l\u2019USZ &#8211; PD Dr. med. Albina Nowak-Wilhelm (<a href=\"&#x6d;&#97;i&#x6c;&#116;o&#x3a;&#x61;&#108;&#x62;&#x69;&#110;a&#x2e;&#110;o&#x77;&#x61;&#107;&#x40;&#x75;&#115;z&#x2e;&#99;h\">&#97;&#x6c;&#x62;&#105;&#x6e;&#x61;&#46;&#x6e;&#x6f;w&#97;&#x6b;&#64;&#117;&#x73;z&#46;&#x63;h<\/a>)<\/li>\n<li>\u00e0 l\u2019CHUV &#8211;\u00a0PD Dr. med. Fr\u00e9d\u00e9ric Barbey (<a href=\"&#109;&#x61;&#105;&#x6c;t&#x6f;:&#102;&#x72;&#101;&#x64;e&#x72;i&#99;&#x2e;&#98;&#x61;r&#x62;e&#121;&#x40;&#99;&#x68;u&#x76;&#46;&#99;&#x68;\">&#102;&#x72;e&#x64;&#x65;&#114;&#x69;c&#46;&#x62;&#97;&#x72;b&#101;&#x79;&#64;&#x63;h&#117;&#x76;&#46;&#x63;&#x68;<\/a>)<\/li>\n<\/ul>\n<p>[\/vc_column_text][vc_separator type=\u00a0\u00bbtransparent\u00a0\u00bb][\/vc_column][\/vc_row][vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_widget_sidebar sidebar_id=\u00a0\u00bbsidebar\u00a0\u00bb][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_column_text] Swiss registre Fabry [\/vc_column_text][vc_separator type=\u00a0\u00bbtransparent\u00a0\u00bb][\/vc_column][\/vc_row][vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_column_text]Le Swiss Fabry Register est un regroupement des centres de comp\u00e9tences. Les centres de Zurich et Lausanne recueillent et analysent sous forme anonyme les donn\u00e9es cliniques&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":16177,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-16194","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Swiss registre Fabry - SFFD<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sffd.ch\/fr\/fondation-sffd\/swiss-registre-fabry\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Swiss registre Fabry - SFFD\" \/>\n<meta property=\"og:description\" content=\"[vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_column_text] Swiss registre Fabry [\/vc_column_text][vc_separator type=\u00a0\u00bbtransparent\u00a0\u00bb][\/vc_column][\/vc_row][vc_row css_animation=\u00a0\u00bb\u00a0\u00bb row_type=\u00a0\u00bbrow\u00a0\u00bb use_row_as_full_screen_section=\u00a0\u00bbno\u00a0\u00bb type=\u00a0\u00bbfull_width\u00a0\u00bb angled_section=\u00a0\u00bbno\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb background_image_as_pattern=\u00a0\u00bbwithout_pattern\u00a0\u00bb][vc_column][vc_column_text]Le Swiss Fabry Register est un regroupement des centres de comp\u00e9tences. 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